Today in the group discussion, we learned about Myasthenia Gravis. Lauren did her presentation on Amanda Jones, who is a photographer. Lauren was able to connect with Amanda via Facebook and ask her questions. One interesting fact that Lauren mentioned was that Amanda is going through chemo and is being treated by cellcept as well. I never thought that Chemo would have been used to treat something like this. Lauren mentioned that she was 34 years old when she was diagnosed with MG, and she is currently 37 years old. I previously didn't know much about MG, but Lauren told us that it was a neurodegenerative disease where the body attacks its own ACH neuromuscular receptors and affects muscle contractions. Amanda's main symptom was her fatigue, and when she got up to cook, she would feel like she ran a marathon. Amanda is a photographer and mother, and since the diagnosis, she can no longer photograph clients because of the MG symptoms. Lauren also mentioned that there was no cure, but an OT would be helpful in getting adaptive devices for her to continue her photography, help with planning her day so that she has rest times but also can participate socially and with family. Amanda told Lauren that she isn't currently receiving OT.
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